
I received an email today from someone who has been reading my blog and is on a similar treatment path to what I have been going through. She is going to have mastectomy surgery early next week, and had some questions about what to wear after surgery, getting a prosthesis, how long before getting one, and how to dress. I sent her a reply, and in doing so, I thought that these questions and answers might be some that other women might have as well. So, I decided to post the reply I sent. Perhaps others can benefit from it.
Dear K,
It makes me feel so good that you have been reading my blog and it has been helpful to you. That has been my hope, that I could somehow encourage someone else who is experiencing breast cancer. Another reason I started it was to document it for myself because my own memory gets blurry sometimes, well most times, and I wanted to be able to go back and find out what was said, what the plan of action was, what I learned, etc. I knew that there would be a lot coming at me, and by writing it down as it happened, I would better understand it myself. I knew that if I had to explain it, I would need to understand it myself first. When my sister was diagnosed with breast cancer, I remember her saying she felt as if she had to get a PhD in breast cancer in a matter of weeks, since there was so much to learn. I felt like that initially, but I grew more confident as time went on and I researched the internet. I've also had tremendous doctors and support staff working on my behalf.
You asked what I wore after surgery. I ordered a camisole from Softee to wear post-surgery. It was $59. Here's the website: http://www.softeeusa.com/home/st1/page_267 I had read that a lot of women liked it, and it worked well for them. It is very comfortable and soft; non-chaffing. It comes with 2 fiber-filled prostheses that you velcro in to prevent it from shifting. You can remove some of the filling and adjust it to make it match your other side.
When you come out of surgery, you will be bound with what they call an abdominal binder, secured with velcro. It can either go on top of the other breast or below it. You will find that you really want that binder on. It makes you feel much better to have the security of it compressing you. It also helps to keep the drains in place. I wore the camisole over the binder. I went to a party about 2 weeks after surgery and for that I put on a bra and put the fiber prosthesis into the cup, then pinned the bottom of the bra to the binder and everything worked and stayed in place. I found that I didn't look out of balance, and by wearing a loose cardigan over the blouse I was wearing, I looked perfectly normal and felt fine. The pinning helped to anchor the bra from riding up on the empty side.
Most days, I go bra-less, especially around the house. I go for comfort. When I go out, I either wear the camisole and prosthesis or a bra, but by wearing loose clothing, or having a coat on, no one notices. I find myself less and less self conscious as time passes. Prior to surgery I was obsessed with worrying that I would be flat on one side, but I'm amazed at how little it concerns me now. I also go to water aerobics at the pool, where I have pinned in the other prosthesis to my bathing suit. I feel a little self conscious, but now more because I have all these radiation markings that show, and I think people wonder what that's all about. But most everyone there are my friends, and know what's going on. They are permanent markings covered with clear tape, not permanent tattoos.
I haven't yet gone to get a permanent prosthesis, although I should do that soon. I hear Nordstrom's has fitters that will work with you and have the name of another place nearby that I can go to. I'm in the process of having radiation therapy now, and within a few weeks I expect the area will be tender from burning. At that point I may not want a prosthesis next to my skin, because I've heard it feels like a sunburn. I don't know yet. I've only had 2 treatments so far of 33. Since it's winter, sweatshirts and sweaters are the norm. Once the weather gets warmer and I want to wear lighter clothes, a prosthesis will be a must.
I hope this info is helpful to you. Send me another email if there are other questions I might be able to help you with. And best wishes for your upcoming surgery. It really wasn't nearly as difficult as I thought it might be, and I hope it goes equally well for you. I know each of us is different and has a different experience. My cancer experience thus far has been a positive one, and most of my fears are totally gone. By accepting the reality of my situation and keeping a good attitude about it - which I have tried to do throughout my blog - it's really not a big deal to me any more. I couldn't have hoped for a better outcome throughout this experience, which is simply not the case with many women, I realize that. But for me, things have gone extremely well. I have had wonderful support from my husband, family, and friends. For that reason, I don't think about the negatives any more - such as being flat on the mastectomy side. By the fall I will be getting a new figure thanks to plastic surgery, and I'm really excited about that.
Hugs,
Diane
PHOTO: These are two wild goats grazing along the road our tour bus took in Ireland in 2004.